Our Mission

Disrupting the Traditional Registry Model

    We are trusted intermediaries, putting patients at the center of a disruptive model for developing better treatments for diseases.

  • We amplify the voice of patients to optimize the search for better treatments.
  • We develop innovative programs and business processes for collecting and appropriately sharing de-identified data to enable faster progress.
  • We use our secure and robust technology platform to connect patients with advocacy organizations, academic researchers, clinicians and drug developers to foster beneficial relationships.
  • We encourage sharing study findings to keep patients engaged and help them learn how other people manage similar health challenges.
  • We aggregate data and promote sharing it openly to break down silos that impede medical advances.