Want access to a research-ready patient population? Looking for patterns across therapeutic areas?
AltaVoice connects academic researchers with patients, advocacy organizations, clinicians and drug developers for the benefit of all. Our Patient Insights Network (PIN) securely houses and safeguards data for more than 400 diseases. We protect patient privacy while collecting data from around the world to help researchers understand the symptoms, diagnostic process, quality of life and cost of living with serious health conditions.
A Patient Insights Network (PIN) is more powerful than a traditional registry. It is an online, interactive platform for surveying patients, uploading medical records, tracking health outcomes and sharing de-identified disease data. It’s HIPAA and FISMA compliant, secure and research-ready.
Unlike typical clinician-driven registries, patients are at the center of our model. AltaVoice PINs make it easy for patients to share their experience, contribute medical data, and maintain their privacy while being connected to the latest research, treatment and disease education opportunities.
Jumpstart Your Research
Contact us about working with Advocacy organizations to expand your research or start a Patient Insights Network for a new research community.